I’m more conscious about what I post online in the past few years. I’ve always included the boys in the conversation surrounding the blog. I have a blog and they understand that what I do is online. However, they are getting older and they are starting to make their own individual footprints in the online world so I’m trying to share what is going on without too much identifying information.
When you parent a neurotypical child your path through life is fairly predictable. Don’t get me wrong, it’s not without its twists/turns/bumps/surprises, but society and the educational system is geared towards the normal child progressing to be a normal adult. Whatever normal is.
Neurotypical. That’s a word that’s part of a brand new lexicon that I’m rapidly becoming accustomed to.
Like every other parent who has found themselves on a slightly different path than they envisioned the last while has been difficult.
My child is still the same they have always been. Nothing has changed about them. Life will be similar but better for them now that we know what their differences are. I, however, carry around worries that they will come up against so many more obstacles than their peers and that life will be even more challenging for them because they are marked differently to everybody else.
Now we have to channel our efforts in this direction and steel ourselves for a prolonged journey into the land of dealing with various state and semi-state institutions. To plead, not for what he needs, but for what he’s entitled to. There’s a big line down the middle of his needs and entitlements. At times the chasm that the line has become is taking my breath away.
Life goes on; we are resilient and will adapt. It’s time to get used to the new normal.
I’ve had this post in my drafts for quite some time. A long time as it happens. For months when I went to post on the blog it became an obstacle to posting something new. I’ve always worn my heart on my sleeve when it comes to parenting. I’ve edited and posted this a million times in my mind. This is not a ‘poor me’ or a ‘poor them’ blog post. It is what it is; we are where we are.